How Data Leaks May Compromise Your Medical Rights
What happens to your health information once you share it with your doctor? Despite the potential of technology to help us retain control over our health information, our electronic health data leaks and flows in places that we’d never guess. Hearsay Culture addressed this issue in a 2012 conversation with Deborah Peel, a leading thinker in health data privacy, by asking why data is floating around in the first place.
This interview came on the heels of medical practices rolling out their e-medicine platforms—something used a lot more since the start of the pandemic. Dr. Peel’s unique perspective as an MD with a focus in patient advocacy allowed Hearsay Culture to translate a complex topic at a time when we were just beginning to comprehend the importance of data privacy.
“Individuals believe as a matter of principle that they should control their information . . . That’s why HIPAA does not pre-empt any of these rights, but if you look at the way health technology systems have been developed, they all have zero consideration for our long-standing rights.” – Deborah Peel
“Information is the lifeblood of medicine, and health information technology is destined to be the circulatory system for that information.” – David Blumenthal, health care policy expert